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Alzheimer’s Association The Alzheimer’s Association is the leading voluntary health organization in Alzheimer care, support and research. They seek to eliminate Alzheimer's disease through the advancement of research and to provide and enhance care and support for all who deal with this condition. In all of their efforts they seek to connect people from all across the country who share their experiences and find support and friendship with others living with Alzheimer's.
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| American Academy of Sleep MedicineThe American Academy of Sleep Medicine is the only professional society that is dedicated exclusively to the medical subspecialty of sleep medicine. As the leading voice in the field of sleep medicine, the AASM sets standards and promotes excellence in health care, education and research. The AASM membership consists of more than 7,000 physicians, researchers and other health care professionals. These members specialize in studying, diagnosing and treating disorders of sleep and daytime alertness such as insomnia, narcolepsy and obstructive sleep apnea.
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| American Cancer SocietyThe American Cancer Society is the nationwide community-based voluntary health organization. It is dedicated to eliminating cancer as a major health problem by preventing cancer, saving lives, and diminishing suffering from cancer, through research, education, advocacy, and service.
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| American Diabetes AssociationThe aim of this site is to comprehensively address all of the issues diabetics face and more. You can find information about the disease, resources and tips for those living with diabetes, and even recipes for the diabetic diet. There are also opportunities to help the organization with the fundraising they do for research. Additionally, you can sign up for e-newsletters. The site has a Spanish language section as well.
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| Arthritis FoundationThis website offers information and resources about Osteoarthritis and Rheumatoid Arthritis.
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| Arthritis Insight
At Arthritis Insight you will get easy to read factual information on osteoarthritis, rheumatoid arthritis, fibromyalgia, gout and other types of arthritis. In addition they offer support from others with arthritis, tips for better living, the latest arthritis news and more.
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| Autism CollaborationThe Autism Collaboration embraces and executes a parent driven research agenda. They bring together the most experienced autism advocacy organizations in the country .
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| Cerebral Palsy Information CentralCPIC strives to provide you with the most complete information dealing with Cerebral Palsy. Our information is geared toward individuals with CP, families affected by CP, and just those trying to learn more.
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| Developmental Disability.orgThey are a resource for valuable information on Developmental Disabilities, sponsored by the Social Work Program at the Metropolitan State College of Denver. They provide training, curricular information, and other general information on Developmental Disabilities.
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| Down Syndrome SitesA directory of sites focusing on Down Syndrome.
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| Genetic AllianceGenetic Alliance is a coalition of more than 600 advocacy organizations serving 25 million people affected by 1000 conditions. The organization works to transform leadership in the genetics community to build capacity in advocacy organizations and to educate policymakers by leveraging the voices of individuals and families. Genetic Alliance increases the capacity of genetic advocacy organizations to achieve their missions and leverages the voices of millions of individuals and families living with genetic conditions.
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| Genetic and Rare Conditions SiteThis site is a directory of information about genetic disorders. It is run by the
University of Kansas Medical Center
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| Gulf War Syndrome-WrongDiagnosis.comThis is a comprehensive website that lays out what is known and unknown about Gulf War Syndrome. There are discussions about symptoms, research, possible causes and possible treatments. It also has information about mistaken diagnoses of those with Gulf War Syndrome who are told that they have something else, as well as those with another disorder who are told that they have Gulf War Syndrome. Along with this information about the research and the experience of patients, the site provides forums where advice and support is available. The site is part of WrongDiagnosis.com, which deals with other medical conditions as well,
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| Interdisciplinary Council on Developmental and Learning DisordersThe Interdisciplinary Council on Developmental and Learning Disorders is a pioneer in its work to advance the identification, prevention, and treatment of developmental and learning disorders. Through its research, training and publications, ICDL extends knowledge of developmental processes and provides a framework for understanding and improving interventions with infants, children and adults with challenges in relating, communicating and thinking, including autism spectrum disorders.
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| Little People of AmericaLittle People of America is a nonprofit organization that provides support and information to people of short stature and their families. Here you will find resources pertaining to dwarfism, medical information, instructions on how to join our e-mail discussion groups, and links to other dwarfism-related sites.
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| Lupus Foundation of AmericaThe Lupus Foundation of America, Inc. is the foremost national nonprofit voluntary health organization dedicated to finding the causes of and cure for lupus and providing support, services and hope to all people affected by lupus. The organization has nearly 300 chapters and support groups nationwide. The LFA plays brings together researchers, clinicians, elected officials, policy makers, industry leaders, other national organizations, and people affected by lupus – to address lupus on the federal, state and local levels.
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| Lupus Research Institute
The Lupus Research Institute backs basic and clinical research studies. Scientific and medical specialties represented among grant recipients range from rheumatology to cardiology, nephrology, neurology, and dermatology. LRI also invests in the future by recruiting, motivating, and supporting new investigators. The LRI has funded researchers who have uncovered mechanisms, treatments, and potential diagnostic techniques in kidney disease (lupus nephritis), cardiovascular disease, lupus-releated central nervous system disease, and photosensitivity. The website makes information about the disease available, and offers advice to those dealing with Lupus.
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| Muscular Dystrophy AssociationThe Muscular Dystrophy Association is a voluntary health agency -- a dedicated partnership between scientists and concerned citizens aimed at conquering neuromuscular diseases that affect more than a million Americans. MDA combats neuromuscular diseases through programs of worldwide research, comprehensive medical and community services, and far-reaching professional and public health education.
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| National Aphasia Association This nonprofit organization promotes public education, research, rehabilitation and support services to assist people with aphasia and their families.
Aphasia is an acquired communication disorder that impairs a person's ability to process language, but does not affect intelligence. Aphasia impairs the ability to speak and understand others, and most people with aphasia experience difficulty reading and writing. It is often caused by a stroke, though other injuries and health problems can cause this disorder.
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| National Kidney FoundationThe National Kidney Foundation, Inc (NKF)., is the major voluntary health organization dedicated to preventing kidney disease, improving the health and well-being of individuals and families affected by kidney disease and increasing the availability of all organs for transplantation. Their website has information about kidney disease, opportunities to help with fundraising, and their lobbying efforts, and an e-newsletter. They also cover kidney transplantation issues.
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Note: All prices in US Dollars
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